Resilience is the capacity to respond positively to hardships that someone might come across, including living with a chronic illness. It is about adapting to the new normal, learning information, and focusing on strengths and values. Being flexible and adaptable, having good communication within the family and medical team, and using positive coping strategies can all help with resilience.
Amanda Rozycki is a licensed clinical social worker at Duke Health's Division of Child and Family Mental Health & Developmental Neuroscience. She also manages the ATLAS Program. ATLAS stands for Adolescents Transitioning to Leadership and Success and it one of five similar programs in the United States. Cindy Petersen is a parent of a child with a chronic illness and she comes alongside other families who have children with special healthcare needs as a Family Partner with Duke Health.
Resources:
ATLAS Program: https://ipmh.duke.edu/atlas
*Change of policy since the recording was made: Only active Duke patients are able to participate in the ATLAS program.
Got Transition: https://www.gottransition.org/